November 1st, In Great Detail

Author: Vivid Muse  //  Category: Breast Cancer, Hauntings, Mom, Whining

Lots going on, kittens, but I am still determined to clear out my Draft posts. Only relevant ones, natch, and I decided to go from oldest to newest. I flinched and nearly fled from this one during editing, but for reasons I won’t explain here, it is miraculously timed.

The last edit date was mid-November, 2010. It’s very, very stale but I’m powering through it because I don’t want to ever have to remember it in detail again.

Apologies for the scattered nature as I try and capture the chaotic and ancient thoughts to pin them down to the page. I don’t know why I started writing about the bittersweet nature of my wedding anniversary the way I did, but I’m honoring my old draft by way of keeping the format and filling in holes.

I’m also creating a Kamikat Alert to warn when emo is flowing freely. I give this one the highest possible. I’ve been crying nonstop while reading/editing it.

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On November 1, 2002, Chooch and I went on our first official date. The following summer, we became engaged and then my mother told us her cancer had returned. A few months after that, we married. Completely by accident, we were married on the same exact date, a year later, on November 1, 2003. (When I say by accident, I mean it. Chooch would have to confirm, but I think it was well after our first wedding anniversary that we realized that it was a double anniversary.)

In the fall of 2005, my mother was over two years into her second occurrence of breast cancer. Nothing had worked, and as a last resort she had pushed really hard to get into a clinical trial for a new medication that was in its first round of human trials. She was that determined to live. I watched her fight like a battle-hardened warrior, but she couldn’t beat it alone. She needed the medical community to fight for her, too, so she got them.

This chemo ‘cocktail’ was particularly nasty, and while I won’t go into details beyond that, we realized too late it was killing her instead of the cancer, which continued to grow and spread. She was hospitalized in early October 2005 because her body functions were shutting down. At the time, it was just one more hospital trip that I drove her to, in a very long line of them in the few months since I quit school to help her and my dad as they were overwhelmed and I worried for my dad’s health. I am still haunted by the fact that when she walked into the emergency room that day that we had no idea that she would never go home, or that it would be the last few steps of freedom she would ever take.

Her body barely recovered and we almost lost her at one point. She went in and out of a sleepy/coma-like state and lost the ability to walk. She slowly emerged and then on November 1st, we finally got the answer we were bugging her oncologist for – we were told that there were no treatment options. One of us must have asked what was next, if not chemo, because he started talking about “making her comfortable” and “managing her pain” and that he believed she may have as long as six months to live.

As was common at this point, Mom and I were alone when we got the news and after he left us we grieved as you might expect. We clung to each other and wept. I reassured her and she reassured me. I don’t really remember much more of the day. I know we told my dad, but I don’t remember it. I got home that night, and don’t remember much other than picking up the phone to resume my usual evening activity after spending time with her during the day — spend the next few hours on the phone with my siblings and Mom’s siblings and whoever else wanted an update. I knew I was lucky to be able to help her and it was important to me to relay the news, in whatever detail they needed, to family and friends.

The first person I reached was my Mom’s sister. Needless to say, this particular pronouncement required an excruciating retelling of every detail. She knew that I would be on the phone with this news for anywhere from 2 to 4 hours, explaining, reassuring and relaying requests and information to and from my Mom.

Mom’s sister offered at some point to make the calls so that Chooch and I could find some time to celebrate our 2nd wedding anniversary, which was also that day. I was hesitant, but also in desperate need for a reprieve from it all.  I agreed and she promised to call my brother and sister as well as her brother. I didn’t know how much I needed to not be the messenger of this particular message any more, until she moment that she took the task from me.

Tangent: I can still remember seeing the bag of candy she had on her hospital table as we talked about what the oncologist talked. The day before had been Halloween, and she’d wanted to have candy to give out in case any kids that were stuck in the hospital were trick or treating. To my knowledge, the only trick or treater she had was my son L.T. He was eight years old. Once in his costume, we went to visit her again and she loaded him up. When I looked at that nearly full bag of candy the next day, I was thinking how impossibly wrong it was that her last Halloween was spent in the hospital. She always loved Halloween and the joy it brought kids, all kids. I still wonder if that thought occurred to her, too, the next morning as we hugged, cried and tried to make sense of it.

Back to my wedding anniversary night, and not even an hour passed before I got a call from my sister. I don’t even think we’d had time to decide whether to go out to dinner to celebrate or order in and coccoon. My baby sister (9 years younger) was crying inconsolably from my aunt’s call. Some of the information got confused and it scared the living hell out of her. At the time, my sister was living with her husband was in the Army and stationed in Texas while all the rest of us were in Virginia. She carried a lot of guilt about this, and it’s possible she still does. I really wish I could take that from her. Mom was over the moon that my sister was starting a new life married to the man she loves, rather than sitting in the hospital room, watching as she wasted away. Their mother/daughter bond was so strong, she never once questioned my sister’s love or loyalty. In typical fashion, Mom saw beyond herself and could only grin with joy for the happiness sis found and still finds with her husband of now nine years.

But when I heard the terror in my lil’ sister’s voice, I was immediately shamed. Yes, of course, I realize that I was entitled to a night off to catch my breath and stay sane and have some joy for ourselves. Just not at this price. I was grateful that she called, as the thought of having gone off for a romantic dinner while she sobbed desperately would have haunted me forever. Chooch and I agreed that it was more important that I untangle the information. I don’t even remember what exactly it was that upset everyone, it’s too deep in the shadows.

I soothed my sister and called my brother. Sure enough, he was reeling, as well. I again went over all the information and gave reassurances. I then called my mom’s brother and cleared up his questions. Finally, I called Auntie, to reiterate the information to her to make sure she understood, because what she relayed wasn’t completely accurate. I was frustrated, but never at her. After all, she’d just found out her big sis was really and truly dying now, of the same thing that took their mom and their grandmother before that. Her intentions were the very best and I remain grateful for the love she demonstrated by trying to give me a night off.

Hours later, I finished the last call and vowed to myself to never delegate that job again. Somehow, when there was something that needed to be done, I was able to push my fears and horror at what I was hearing and seeing to the side and get things done. Maybe it was because I was the one “in the trenches” with Mom, and in every way we were at war. It was every day.

A few days later, my parents celebrated their wedding anniversary. My dad snuck a bottle of wine into her hospital room and they had as romantic a dinner for two as possible. It was hard, lifting the mood before I left, but we all did our damnedest. I can’t imagine how bittersweet that dinner was, and I love them so much for celebrating their last anniversary.

Do you want to know what I think was the hardest? The cancer was already in her bones, had spread to her Mom’s skull, and we believe, to her brain. We aren’t sure because the scans and most non-life-supporting testing stopped. When it’s terminal, why continue putting her through it? We already knew from DNA testing that it was the breast cancer from 1991. It had returned and was in her colon, bones, stomach and skull. We knew she was going to die, just like her mom and her grandma had, from breast cancer.

Our suspicion that it spread to her brain was because she started losing memories, when her mind had always been sharp as a tack. Just another horrible degradation before she dies, why not? Grateful that you still have your mind while you’re dying from cancer and unable to walk? Not for long, with this disease. It’s when I first got a taste of the cruelty of a failing memory, at least as I experience it. You don’t get to choose who’s face you’ll forget. Hell, you don’t even get to remember that you forgot them to apologize later!

But the possible spread of cancer to my mom’s brain was confirmed, in my mind, by her question upon my arrival one day. The only silver lining was that LT was not at my side as he frequently was, since it was a school day.

Her question? When her oncologist would be coming to meet with her about resuming her chemo? The cancer was growing unchecked while we did nothing. Would I call him to her room to discuss it?

I froze. I blinked. The words made no sense. Wait, I thought, what’s wrong with my brain? Nothing. I just couldn’t accept what her question meant. Tears sprang to my eyes. She didn’t remember the death sentence she was given, weeks earlier. I don’t even think I took a breath.

I wanted to say, “Okay, Mom. I’ll get him here as soon as possible. Want a pedicure? How was breakfast?” Deflect, distract, redirect. Sure, it would be a lie. But it seemed like a kindness. Maybe she’d remember on her own? Was that kinder? Maybe, but I feared what would happen when she found out the truth. In my mind, it was more cruel to waste what little time we had left with deception and lies. She took great pride in being a strong woman. She hated lies and had never been a delicate flower in need of babying. She was NiNi, Warrior Queen, and she hid from nothing. Khaleesi, would’ve been more fitting, if she’d known the reference.

Yet… silence. No words came out. Just her looking up at me with those beautiful, trusting eyes.

Ah, yes, another blow, just so. I immediately understood. Our roles had switched. She was the innocent and helpless one now, and I was the one in charge (by family agreement) of protecting her. Keeping her safe. Casting out her fears. Comforting her.

But, how? She was my touchstone and my source of unconditional love, my central support beam my entire life. She was my mommy! Then, when I needed her more than I have ever needed her, to be stronger than I could ever hope to be on my own, I couldn’t reach for her hand to comfort mine.

In my head, I screamed, cried, kicked and fought against it all.
I refused.
I would not do it.
No way am I strong enough.
Nope, the doctor can come back and tell her.

Instead, I found myself holding her hands in my shaking ones as I told her, again. We cried as we had the first time, because to her, it was the first time. I don’t even know what I felt. I just curled up with her on the hospital bed, tightly clinging to each other, with vigilant and respectful eyes checking on us from the door from time to time by the palliative care staff. We grieved again.

And when she asked a few weeks later, I told her again. It’s foggy after that, I don’t know how many times I had to tell her, in total. I’m grateful that I was there for her, but she was drifting further and further away from me, one shimmery silvery wisp at a time.

By way of bringing it current, and possibly to a point (*gasp*), the intervening years has let go of our anniversary as a bittersweet day. I do think of Mom, but instead of sadness and tears from the hospital room, I now see her laughing and smiling with us at our wedding. I picture she and Chooch killing the bottle of Dom when my parents toasted our engagement. (Damn, she was adorable tipsy, although I rarely saw it.) I remember her teasing me that Chooch was using me to get to her because they were the true soul mates — straight faced and with a wickedly cocked eyebrow, as only she could do. And letting me know what I needed to know most, because she knew the three of us (my two sons and I) better than anyone else: that she approved of him as my husband and as step-dad to my sons.

She told us in a hundred different ways that she thought he was right for me/us, but most poignantly when she asked us to move up the wedding to ensure she would be alive to attend. We did, and she did. It was a chaotic and magnificent day that I treasure all the more because she was there. She was beatific, at peace over my sons and I with Chooch in our lives and the knowledge that my sister would be soon married to the love of her life. My brother and his wife were happy and strong. Everyone else was healthy. What more could a mother need to know before she dies?

She passed away in the wee hours of January 13, 2006, a little over three months after that walk in to the emergency room. She was 62. She and my father were together over four decades. She had three kids, seven grandkids and, since her passing, three great-grandkids. She wrote, painted, baked, worked gardened, taught, played and gave hugs that could make you forget why you needed one in the first place.

 

I’ve reclaimed November 1st as the celebration of love and family, as it’s intended. Chooch and I celebrate our love, our bond and our marriage, with number 10 later this year. Times are chaotic, but our love is like Valyrian steel baby, folded a thousand times in fire. Besides, Mom would kick my ass if I let anything get in the way of celebrating our anniversary. She certainly set the example on that one.

There are several songs that are intertwined with Mom in my mind. This is one of the most powerful. I didn’t find a video by Colin Hay for the song I first heard on the Garden State soundtrack, but this is my favorite of the fan submitted videos I viewed. I almost didn’t include it for fear of being accusations of being maudlin, overly sentimental or pity seeking, but…

Fuck that. I really miss my Mommy today. I’m going to treat my broken heart to a good cry.

YouTube Preview Image

“I just don’t think I’ll ever get over you”
Song by Colin Hays, formerly of Men at Work
Video submitted to youtube by EmjayTulip.And as always, Mom was right. Chooch is my soul mate. No one else could have given my laugh lines and wrinkles in the intervening years.

How To Destroy Angels at the Fillmore

Author: Vivid Muse  //  Category: Chooch, Music

I promised myself I would write a blog post for every concert I go to, after wishing I’d already been doing it. I’m doing a hit and run with no research, so consider yourselves warned!

Last night’s How to Destroy Angels (HTDA) concert was originally a present for Chooch’s 42nd birthday in March. He’s a huge Trent Reznor fan, dontchaknow.  I never got it on the calendar and it was only because of a brief Twitter break yesterday that we even stood a chance of attending. (Take that, Twitter critics!)

Because of work stuffs, Chooch was stuck late at work which resulted in us missing the opening act. That was a bummer since I almost always find great new music this way. We got there with about 20 minutes to spare, finding bathrooms, beverages and our spot. Just as we started to look around, the show started. Perfection!

This was my third time seeing Reznor, but my first seeing him with his new band. The visuals are what I’ve come to expect, brilliant and startling and overwhelming. Between the dizzying visuals and the intense music, I had to miss about half the show to closed eyes. The room pulsed and the audience was mesmerized. Occasional peeks made it clear that I was missing out on some serious eye candy, but it was either that or bolt and I was enjoying my hubby’s hand in mind as we swayed together to the amazing live music.

The lightness that his wife brought to the stage and the music is heavenly. Her voice was crystal clear, a shocking perfection that I repeatedly questioned if it was live or lip synch, but the emotion in her voice showed itself and I eventually just relaxed into it.

Although one of the shortest concerts of my life, partly due to our lateness and partly due to their short list of songs (to date), it was immensely enjoyable. Every concert I go to with Chooch is joyful, even when the acts aren’t great. But seeing him so happy last night, moving to his favorite musician’s music was exquisite.

For our new interest, I’m happy to add the Fillmore as a venue I’ve been to, as it’s clean, well-appointed and laid out and has ample parking in the area. I’d have loved some vid screens, as my height prevented a clear view of the stage, but we didn’t get a chance to really explore to see if there was a more comfortable place to watch. Next time!

Happy birthday, Chooch. I pledge my turtle love!

Unguarded, Within Castle Walls

Author: Vivid Muse  //  Category: Chooch, Friends, No Whining, Too Long For Twitter

Edit: I’m hoping to post a review of Ravenwood Castle itself, but I first wanted to share thoughts from the social experience point of view, since that was the point. Since I never know how long a post will take me to finish, I will say that I recommend it highly. The board games on hand and the atmosphere of the great hall made it impossible not to enjoy the experience. In short, I can’t wait to go back for another relaxing visit.
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About a month ago, my husband and I were invited to join in on surprise birthday festivities for a friend. It turned out to be more fantastic than we could have hoped, in spite of our high expectations and my Health Blah aggro. There were old friends (comparatively speaking, back to the beginnings of my Twitter experience in 2007), but also new friends. And it takes only a tiny bit of bravery to say that, because I feel the bond of a shared experience, even if I didn’t get to spend much time with each of them.

And while I wish I had been less shy and gotten time with everyone, I prefer to err on the side of not being a pain in the ass (whenever possible). Besides, I cannot imagine being able to retain even ONE more memory or survive one more breathless and teary-eyed laughing fit. As I was trying to gather my scattered and grateful thoughts together to do a post commemorating the heart-container-filling weekend, something triggered a recurring thought, and I’ve decided to use our weekend setting to better noodle through what I keep returning to:

Human interaction is an unpredictable roll of the dice, as ALL parties imprint on shared experiences, depending on their mood, behavior and personality.

And in this case, it was tasty. 

Invited party guests were asked to keep it all quiet, both to keep the surprise from the honoree and to avoid hurting the feelings for those that space did not allow to include. It was excruciating not sharing more, but I will say that with the right combination of people, anything is possible.

The only downside was that we were “roughing it” without internet, cell signal or HD TV’s blasting ticker tape news over a reporter talking in another direction. An insulated bubble was in place around us and we were (primarily) our only distractions. Phone calls were not easily made, people (myself included) were not constantly reaching for their devices to check for messages, tweet, post or otherwise spend their time with a mental foot in the outside world. I found myself grateful to be disconnected with others that were more appreciative to be there than to waste any real time watching for connectivity, save those with important matters to address.

More frequently, people expressed gratitude for the experience and the efforts made by all to keep it truly special and just embraced it. There were some jokes and comments made, but I don’t remember anything other than general statements like, “Well, I’d check IMDB.com to tell you what else Ryan Gosling was in, but I can’t!” Which was typically met with laughter rather than kvetching.

In regards to my Health Blahs, the weekend reinforced in me, after several occurrences, that taking the time to meditate, nap or whatever else is needed to be on an even keel, MUST be done. Not only was my experience improved by trying to manage my neurological symptoms as they arose, but I found it easier to do so knowing that my “energy” or “mood” or whatever you choose to call it, could have a negative impact on the experience for others. 

When I wasn’t feeling well, I could easily take my leave and return recharged and ready for the next fascinating and/or giggling adventure. And although he offered, it would have been unkind to allow Chooch to come with me to give comfort when I was fine, just in pain or managing some symptom or another.  Better to leave he and the others to their fun and come back to watch or join in on the gaming, if and when I was feeling well enough to, for the greater enjoyment of us all.

But as for the impact of everyone’s mood, I think it’s the same kind of thing that all that advice from the Dog Whisperer and other animal trainers (as well as those that do Super Nanny/rescuing children in unhealthy situations) all boil down to — demonstrating how crappy behavior by those in charge directly impacts the behavior of their (fill in the blank). If your emotions are in conflict, you are likely create chaos in those around you. “Taking Five” or a “cigarette break” or a “mental health break” all fall into this as well. It’s a kindness to all, practicing self-care. This is kind of an epiphany for me, since I always put my energy into helping others and then straggling to keep up when things are in motion again. 

It also helped knowing that I wasn’t alone in the need to occasionally isolate myself. Others have similar health issues, anxiety issues, creative projects to work on, or whatevs, so I wasn’t mocked or teased for being a light weight. Or any other weight, for that matter. Even without a moat, I felt utterly safe.

I don’t know what my point is, other than total relief at having found myself in the middle of a group of people in a castle in the woods that were all of a similar mind, all being respectful of everyone else’s needs for the Greater Good. All being fascinating, extremely clever and open to the experience.

And, as always, the kindness demonstrated towards my husband always makes me appreciate the giver more, since I don’t think Chooch has revealed even the tiniest fraction of just how magnificent he really is. I’m an instant fan of anyone that gets that his Greatness. I mean, just look at him, for Glob’s sake!

Again, happy birthday to all we celebrated! Especially to my beloved Chooch, whose 42nd birthday was days later. Here’s to you, my love, and a birthday we’ll never forget.

(Photo taken by the stunningly talented and utterly captivating J.R. Blackwell. Many thanks for an image that we’ll treasure forever.)

Chooch Schubert at Ravenwood Castle in New Plymouth, OH. 03/09/13

Chooch Schubert at Ravenwood Castle in New Plymouth, OH. 03/09/13

 

Can You Spare Any “Get Well, Soon!” Wishes/Prayers/Vibes?

Author: Vivid Muse  //  Category: Family

Nope, not for me. Purging thoughts here, so skip to the bottom for the important bit.

We fly on Friday, December 21st, 2012. Yes, the same day the Mayans. And lookit, this has been one mucker fother of a year and I was not being brave or anything else. In truth, it wasn’t on the airline calendar, so we jumped at the lower fare (over $500 difference for 2 people!!!!).

Once realized, I came to terms with it quickly since we are heading to our Paradise — the place we always struggle and fight to leave, once we get there. We were plotting a most excellent holiday party with all of Chooch’s Cali family, a grand gathering at a much needed, difficult time for my man and I.

As expected, in spite of knocking wood, The Universe quickly bashed my brains in after my off-the-cuff remark that “2012 can suck it”. In fairness, it was while also proclaiming hope for the holidays, time with loved ones, reaching out for a touchstone/talisman/calmness that only comes from time with Chooch’s family. And it’s long overdue. But many different things vie for attention and time, and suddenly Christmas was coming so swiftly as to feel as if I’m being hunted down.

Note: Everyone has worked countless hours on Ditched by Kate’s upcoming album (release date TBA) and recent show (Nov. 26th, you missed it, sorry!). Possibly energized by the season, we’ve been working like elves around the clock, in the hopes of releasing their new album this year. I am unspeakably proud of what these amazing musicians created and are honing for the world to hear in all its glory. Long live DBK!

This and family issues combined as Christmas approached, and I was not prepared by any stretch, but, no worries, I had two weeks left. And if you know me, you know I can do a lot in 2 weeks. Then, BAM! Twisted ankle, worse than any I’ve ever had, and over a week later, I still can’t walk without crutches.

Okay, suck it up cupcake, throw out the baking list for my family’s gathering, forget shopping, just get to California for the holidays. If it hurts, push through it and get there. Pain is pain, but gather ye rose buds while ye may, and all that. Quick like a bunny — hop, hop, hop!

Then, in a year already besieged with tears for loves in pain and loves in loss, my unbelievably adorable Mom-in-law is now hospitalized for the next several weeks. By all signs, she will be fine. And it appears like better support will be available than before.

I am grateful that we got to hear her giggles of excitement when we told her of the trip.

I am grateful she is well and in the best hands.

I am saddened we won’t get the Christmas visit we dreamed of, but cling tightly to gratitude that we get to put our arms around her in less than three days. I love her dearly, as did my Mom. And her taste was impeccable, Chooch is my proof of that.

So, I think I’ll toss my hope and optimism in a tiny box and protect it with bubble wrap, tissue paper and everything else I can until it doesn’t resemble itself any longer. It will hide in plain sight of the Universe, but because it’s so ugly, it will not garner any attention. My hidden optimism will be safe from the stamping and stomping of the busy world, but will sparkle and shine for me and anyone else that wants to share in its glow.

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If you skipped to the end, please take my post title as a sincere and humble request on behalf of a sweet and loving woman that helped shape the man and family that I love beyond comprehension. Many thanks if you can spare the time, as I know there are many things pulling at everyone this time of year. Namaste.

43, Not 21

Author: Vivid Muse  //  Category: Chooch, Family, Friends, No Whining, Uncategorized

Yesterday was my birthday, and I’ve been spoiled by my husband for the last week or so as he drove me to see a few family and friends. Tuesday night (my birthday eve) I had dinner with my husband, oldest son (Naughty Bear), niece, sister, sister’s husband, brother and father. Due to some family drama, I had more than a little anxiety. I just simply pushed that aside and focused on the excitement I felt that they were all coming to my birthday dinner.

It was a wonderful time, although my brother announced his move far away in a week (?!?!!), and I was even more grateful to have gotten everyone together since we don’t know when we’ll see him next. Luckily, Chooch, my son and my niece are the kind of people that it’s impossible not to have a good time around.

When the waitress asked how old I was, my dad said, “21!” I was standing and taking a picture of someone when I heard, giggled and said “43! Woo hoo!” making it clear to all that I have no druthers about my age. Besides, how awkward would that have been with my 21 year old sitting at the table? No, I embrace my years, color my grays and smile at the laugh lines in my reflection, grateful for every smirk and belly laugh that’s contributed to them. 43!!!! In hindsight, based on his usual flirtatiousness, I think he wanted the waitress to think he was younger. Just kidding. I actually don’t think he knows that I embrace each birthday with such aggression. I love to level up to a new age. Have a giddy moment, even. Give a sigh of relief, even.

We slept in at a surprisingly nice, cheap ass hotel, and headed to the first fun item on the agenda: my annual *cough* physical. Regardless of where I live or how good my local general practitioner is, I always go back to Dr. E for this particular appointment. She’s thoughtful, very clever, empathetic (a rarity, I’ve found, in doctors) and a genuinely good person. She also keeps looking at all my symptoms and bringing up MS as a possibility, which scares the shit out of me. She keeps me honest, kicking me out of denial on an annual basis for well over a decade.

Then Chooch and I had lunch, which I inhaled since my appointment wasn’t until two pm (fasting bloodwork), made a grocery store run and headed home. Mmmm… jalepeno cheddar bread from Sweetwater Tavern … mmmm… Drunken Rib Eye (I don’t order the delish dish, Chooch does. It’s so rich, I only ever want one bite, which he sweetly shares.)

As planned, Housie Jen and daughters Tiny Expert and Feral Dancer joined Chooch in having a cake party for me, and the resulting silliness, giggles and feral impressions made the day special in a completely different way. They are at that amazing age where their full belly giggles and laughter are magical, stopping adults (is it just parents captivated by The Giggle?) in their tracks to stop and revel in the innocent sound. I was so happy to have had the time with them. It eased missing our kids a bit.

It was devastatingly difficult to leave, but TMC was running a special showing of Alfred Hitchcock’s The Birds. I haven’t seen it since I was a teen and was startled and “migrained” by the difference. I don’t think I’ll ever view old movies the same, the ones I’ve only ever seen on a television screen. Never before had I recognized the tremendous difference between the two displays. Having the opening credits play over a wall of blurred images of attacking birds and over-loud screeching birds had my heart racing by the time the movie suddenly went silent and started.

It was something that had never blipped on my radar before, typically getting snacks or fussing with a blankie or whatever, waiting for the actual movie start. But I now see how movie theater viewers would have a much higher fear factor towards the flying murderers from the very beginning of the movie. On the tv, it’s like a commercial or filler (for me) that I only partially pay attention to and I had no fear of the birds at the start of the movie. I don’t know which is a better/more powerful, the lack of fear and seeing how they go from every day birds to killers? Or being immediately immersed into the terror to come?

Now I wish I could see all the AFI Top 100 movies on the big screen. I think seeing some of the ones I disliked may strike me differently. And it may eventually be possible with Turner Classic Movies dropping these tasty theatrical nuggets. My friend Andrea, just told me she heard they are brewing up a Karloff movie for Halloween.

There have been a few small birthday celebrations and toasts this year, no big party as circumstances just don’t accommodate it. And while Facebook doesn’t seem to allow me to reply for about 40 of the well wishes , I’ve read each of them and greatly appreciate each one.

Now, on an unrelated note, there’s a new Hobbit trailer! Yes, I’m annoyed it’s to be a trilogy. Yes, I pray McKellan’s role has been completely filmed. Yes, I’m FUCKING EXCITED. *swoon – Martin Freeman*

An Epiphany Triggered By Friends?!?!

Author: Vivid Muse  //  Category: Family, Friends, Hauntings, Mental, Too Long For Twitter

I am loved.

Deeply.

By more than one person.

It doesn’t matter who doesn’t love me, so I will no longer waste time on that.

It only matters who does love me, on some level, regardless of whether marriage, friendship or bloodline is the reason for our connection.

I don’t even care if it sound like bragging. I’ve spent my entire life talking myself down and struggling to find anything positive to say about myself. So, if it is bragging, fuck it. I’ve earned it.

I am going to now cast a suspicious eye towards all my insecurities, self-loathing, shame and guilt and do an honest assessment. If I’m as awful as I think, why do such amazing and fascinating humans think I’m not? I trust their opinion on everything else- events, movies, books, foods — why not their opinion of me? Oh, right… a life time of conditioning (according to T-Pain, my therapist) leaving me with the core belief of, “I am not, and never will be, worthy.”

I have grown bored with carrying this belief around and constantly measuring myself with it. So I now choose to measure my inner beasties by the same logic I use when considering other people, rather than the much harsher scale I use for my own actions/inactions.

I’ll also be granting myself benefit of the doubt, as I do for everyone else. Hell, even those that have “wronged” me whether in person, verbally or on the ‘Net.  I pick up on things that people think I won’t, and I know more than people think. Still, I’ll be choosing my battles more carefully and only expend energy in areas that merit it.

Is it odd that it hasn’t even occurred to me before to give myself the benefit of the doubt? Regardless, I’m not wasting time on wondering why not, I’m just going to do it from now on. Now, it must become the standard. I know my motivations. They are to leave a positive imprint wherever I go. I may or may not be successful, as I am a puny human, but I must try to make things a little better for my fellow Earth-trapped neighbors.

I also choose to be more selective where I spend my time and to plan less. One of the simplest ways to gauge a relationship, after all, is if people make an effort to spend time with you. Not while they are in the midst of a crisis or busy time of their own, but besides that. Friendship is a two-way, sometime three-way (or more) street.

I am releasing myself from the burden of believing it is all on my shoulders to feed and water friendships on my own, except in extremely rare friendships (you know who you are), where I am not the only one that appears to be doing the heavy lifting. I am rich in True Friendship and will not criticize or judge those that don’t reside there. I choose to try and have fun every where I go. I want to laugh as hard and as often as possible and make deep connections with people. You do your thing, I’ll do my thing, and hey — let’s have fun when we’re together, regardless of possible past drama! Life is too short not to be snorting in laughter more than is considered Appropriate.

I choose to make no time for hate, manipulation or lies in my day. How others choose to spend their finite time on this Earth? Beyond my control, so letting it go.

I am humbly grateful for the things that led me to this today, for it is a good day to know. The path ahead appears to be mired in confusion, sadness and chaos.

Luckily, there are some people showing up to help us find our way in the dark, as we have tried to do for them in the past, so we will eventually be right as rain*.

Now, off I go to scale Mt. Laundry and clean LT’s now-empty room. (Sidebar: Boys are gross. But damned if I don’t love ‘em!) Counting down to Wednesday evening, when I get to see him again for a few days before he returns to his distant home.

Today Shall Not Be Wasted. **

~~~~~~~~~~~~~~~~~~~~~~

*Note: After typing that long used phrase, I immediately wondered what circumstance “right as rain” came from. Here’s what I found, for those interested.

**And if you are unfamiliar with the humble battle cry of heavenly hobos, I again recommend Mur Lafferty’s Afterlife Series. The quote is, I think, from book 3, called ‘Wasteland’. But you must start with the first one, I insist,  called ‘Heaven’. It has helped me embrace the Universe in a different way since the devastating loss of my mother six years ago. Plus, her phrase, “Turtle Tits” from one of the books, is in my top 5 curse word phrases.

Time Heals All Wounds? Meh.

Author: Vivid Muse  //  Category: Breast Cancer, Family, Mom, No Whining, Whining

Today is my Mom’s birthday.  Somehow, the math shows that she would have been 70. It doesn’t seem possible for her birthday and not her to make it to a new decade and new things that the public would allow for her to complain about. Aches, pains, less patience with the horrible people that you encounter during a random day. All the stuff society deafens an ear to, but doesn’t disrespect them for. She would have met her first two great-grandchildren and would be rubbing her granddaughter’s belly in anticipation of the one on the way. It’s unfathomable to me that these beloved children were never held in her arms. Surreal.

I was going to choose today as my first time intentionally not going to her grave on a significant day. (I certainly haven’t made it for every birthday, Mother’s Day, death day and Christmas, so don’t try and paint me with a Sainted Daughter brush. Illness or other issues sprang up and prevented me on those occasions that I did not make it. This is just the first time I made a decision to not go.)  Kind of a tip of the hat to all the progress I’ve made in therapy, by honoring her here instead of at her graveside, where it honors her death, not her life. But LT wants to go, so we’ll go.

As for the title of the post, I was reflecting on how we had to do math to figure out how old she would’ve been. And we did it several more times because the milestone aspect of the year was like a kick to the babymaker. So, I guess time “heals” all wounds, if you mean that you forget just enough to feel a bit guilty. I’ve also recently discovered that I couldn’t remember the final chemo (clinical trials) primary drug name that I believe shortened her life by at least 3 months, so good was it at destroying every living thing in its path, including most of my Mom’s remaining abilities. (No, I’m not litigious, she knew what she was signing up for. But I remain pissed.) I remember it now, but the fact that for even a few weeks, I couldn’t recall it –I was stunned.

Whether because of time or my terrible memory lapses, I’m forgetting things about her. Hopefully just the unpleasant things, but even if I do lose more, there are a kajillion wonderful and loving memories there. I really only need a few, preferably the ones with her arms squeezing me in a tight hug. That and her laughter are the things I miss most. I guess I’ve reverted back to being a little girl where she is concerned. It really is the stuff I miss most. Hugs and giggles from a woman long gone, but wow, did she leave a mark on those that loved her.

I write this guiltily, as I have loved ones that have lost their Moms, too. Some that have been grieving as long as I have and may still be in or just coming out of the denial phase and some who are just starting to fear the grief coming their way.

A little girl, far too young, that has found maternal nurturing in her step-mother, Thank God. I still miss her Mom, tho’, as our friendship was only just reaching full bloom. The young girl is immeasurably happy in her new life, and the memory of her mother is respected and kept alive.

A beloved friend of mine, with the loss of her Mom so fresh that I am at a loss on what to say and can only seemingly give physical comfort. I remember what that feels like when you have a bond as close as theirs, and I remember that nothing anyone could say could soften the blow. All I can suss out to do is hug her a lot and say, ‘I love you,’ as much as possible.

Another loved one, who lost her Mom around when I lost mine, is a Mom herself. She had a biopsy yesterday, so we are praying and waiting out test results. Additional prayers are welcome!

A childhood friend and former sister-in-law has had a recurrence of breast cancer, she’s a Mom of two and their Dad died previously this year. The cancer is spreading quick and I don’t even know what to pray for anymore, other than peace and no-pain for her and her family. Okay, and a miracle that cures her. (Dream big or go home.) My Mom loved this woman, too, and I know she’s fighting for those babies to keep their Mommy as long as possible.  Any positive energy you can spare her way would be immensely appreciated.

If the urge strikes, maybe you could throw out a prayer, energy, vibes, best wishes or whatever you feel appropriate to any or all I’ve listed, or to women or men in your life struggling with loss. It’s pretty fucking ridiculous that I know this many, but in truth, I know of even more fighting for their lives or supporting someone in the fight to survive. Having been a support system during such a time, I know it takes a toll. I’m sending out positive energy, strength and peace your way. And hey, don’t wait as long as I did to get help with all you are seeing/experiencing. It’s a real mother fucker to dig out from under years later.

Tonight we honor her by having dessert first. LT has requested an ice cream cake, and we are picking it up on our way back from Arlington Cemetery. Today we celebrate her life, laughter, joy and love for her family.

I’m the wee one in the middle of the picture. It’s the earliest I have been able to find of her holding me, with my adorable brother happily taking the Big Brother moniker.

The mimosas are indeed in bloom. Love you forever, Pocket Mom.

 

**Apologies for any spelling or grammatical errors. I don’t have it in me to proofread this.

Communal Living

Author: Vivid Muse  //  Category: Family, Friends, Health, Household, Our Kids

Every once in a while, I find myself in a discussion about our living space being in another, completely separate family’s basement. And while it was nothing any of us sought out specifically, after almost a year of living here almost exclusively, I have found great comfort and happiness here.

We have benefited financially, paying less than we would have for a living space. And also by sharing communal groceries and shopping in bulk to save money.

We have benefited materially, by paring down our piles of junk into lesser piles of junk.

I have benefited from the companionship. When you had been a mom for two decades and suddenly you are stuck alone in your silent home for almost 2 years, just hearing footsteps in another part of the house is a comfort. There is life here. I can hear it. And so I feel a little less isolated and lonely when trapped inside by my Health Blahs.

Yes, one of my Housies moved out recently. Yes, I miss her terribly. Our relationship remains untouched by distance, and I will always treasure the house because it gave me that deep bond and friendship and several others. Nothing lasts forever, Kittens, and it’s the bonds that last that matter the most. I pray that our friendship continues, but I only have so much control over that. I will grieve it if it doesn’t survive but am learning to accept the fact that no matter how much I want something, I cannot always make it happen. Progress?

In spite of the change and in spite of the chaos that comes along with sharing a home with a family with young children, this is a place where my family fits, at least for right now.  I never know what I’m going to see when I head to the kitchen at mealtime, and it’s usually something ridiculously adorable. Honestly, I feel so much younger for playing and cooking with these little girls, I feel like I should pay them!

Examples:

  • What, Tiny Expert? You want us all to watch while you perform a magic show? Count me in!
  • Now Feral Dancer’s doing a magic show? Yes, please!
  • What, Jen? You have errands to run and want to take me with you? Yes! I get to knock out my errands, too! (I don’t drive anymore.)
  • What, Phil? You want to write a song on your guitar while I’m cooking dinner? Sure! (I’m a lifelong music geek.)

These are all things I wouldn’t experience if we didn’t live here.

I am happy to say that regardless of what others may believe, this is a place where sunbeams and bubbles are chased while others erupt in delighted laughter. Real laughter, to the extent that tears are rolling and/or you get the unstoppable little girl giggle going and end up gasping for air. Children of all ages laugh and play here, comfortably and safely. Of our kids that have visited us here so far, they have been safe and (allegedly) happy. There is always someone to chat with if bored and Mom is down with a migraine and Chooch is at work. There is always a pet nearby with ears just dying to be skritched.

If it is something you are considering, do it with eyes wide open. You will be eating, sleeping, drinking, pooping (everybody does, and apparently mine is the only poo that smells like rose petals!), sick/healing, exhausted, laughing and cleaning up after each other and those that accompany them. It’s not a decision to take lightly, as both sides are made extremely vulnerable for the duration. Everyone’s pet peeve button will get jammed countless times, and compromise will become your motto, as all here have compromised in one way or another to accommodate the others. But in our case, we really lucked out and it was as near a perfect fit as possible. And although the fit has changed now, I remain happy here.

Whether we are here until September of 2012 or September of 2022, I will always treasure my Housie family and our times together, some magnificent and some heart-breaking. But damn you, Laughter, and the wrinkles you bring when one is lucky enough to laugh this much!

New Fave Line From A Song

Author: Vivid Muse  //  Category: Family, Friends, Too Long For Twitter

Another way of saying what I’ve apparently spent my life doing:

“If somebody’s got soul…You’ve got to make them move.”
“Collect Call”
by Metric (Album: Fantasies)

*This entire album is my current musical obsession.

Happy Birthday, My Angel Boy

Author: Vivid Muse  //  Category: Cooking, Our Kids

My oldest son turns 21 today. Yes, I know he is now A Man in the Eyes of All (except car/truck rental companies). But he was, is and will always be my Angel Boy (and the other various AffectioNames I have for him).   ^_^

He’s far away, and I’m struggling with it. I know, I know, I’ve been parenting from afar for over a decade, get over it already! I prefer to think, Dear Reader, that you understand by now that I’ve never fully adjusted to it and spend a lot of time actively not remembering that I won’t see them until ??? days pass (2 in this case).

But this milestone is hitting me super hard. I’m in the midst of planning a fun weekend with him and His Pal (Awaiting assignment by Naughty Bear of his Public Moniker.) in Philly, which will include Philly Comic-Con. Let’s be honest, they don’t want to hang with someone twice their age while they celebrate.  I know I wouldn’t have wanted my mom tagging along, and she was exceptionally cool.

Since I won’t see him until late tomorrow night, I didn’t get to bake him his traditional birthday breakfast or surprise him with balloons at the foot of his bed when he wakes.

Instead, I’m baking something for my beloved housemate Daddy G (father of another housemate). He recently had surgery and looks more thin than usual. I’ve never thought of him as frail, and I can’t let it to go any further.  I’ve decided to bake him the healthiest thing that I can think of that will tempt him into eating more calories to strengthen his body while it heals. And, oh darn! Wouldn’t you know it’s a baked item. Specifically, The Vanishing Oatmeal Raisin Cookies from the recipe on the Quaker Oats box. He says the ones I made for his birthday tasted just like the ones his mom used to bake. And who doesn’t need a bit of Mom comforting your nose holes when you’re healing, whether it’s physical or emotional?

So, to my Naughty Bear, who I love The Bluest of all of our children, please be wise in your choices. You are too magnificent to waste. This world needs you as you are meant to be, whatever you decide that to be.

And, as a surprise gift for your birthday? I will no longer again say, “I made you, therefore I’m allowed to break you.”*

Love you to infinity and back again, Tiger.

~~~~
*
I have never used the spanking method. Ours has always been a house of time-outs. It was only ever said in jest, so you don’t have to flame me about “How Bad Spanking Is!”. KThxBai