I returned to my longtime neurologist, since he has all the documentation of everything involving my disabilities, having given up on hope of body pain relief via Western medicine. I still visit her to check in and track disease progression, but my focus is on the migraines that leave me completely batty at times.
After discussing everything and our Dr. P started me on a new daily medication, with instructions to double it after 10 days, to what would be my maximum safe dosage range. It’s one he’d put off using in the past because of concerns on how it would impact cardiac issues. I had worse migraines than before and he dropped me back down to the initial half dose and wrote another, new prescription. The last he has to offer, in his bag of tricks. I am giving myself a lengthy wean down on it before starting the new one. The side effects impact every person I live with, after all, and these are mood-impacting medications.
He also suggested Botox injections for migraine relief. A months-long panic attack ensued, in spite of knowing it’s safe. (No, I won’t look younger, the injection sites are primarily on the scalp and down the back of the neck.)
The needles are like acupuncture needles and it’s done in the office, it’s such a mild treatment. None of this reassures me because I keep wondering why it’s sane in the year 2015 to inject botulism into 31 locations on my head, every 4 months. If insurance covers it and if it works. Good news? Can’t make me more stupider! Hubby promises my skull can’t be penetrated and my brain injected with botulism. He hasn’t led me astray yet.
As of now, I’m about to start the last new daily and for some reason remaining on the half-dose of the last daily. Sure, I’m hopeful, but am again suffering from hope fatigue.
I mean, do I have to get my hopes up each and every time and pray they aren’t dashed as I more slowly realize that this solution is as ineffective or toxic as the last however many dozen? Can I just skip that part as I swallow it down and await results? I’m utterly exhausted from being hopeful on my medical stuff and I’d rather put it to use elsewhere in my life.
If it does help, trust me, the world will know it. I just don’t have the energy to get super hopeful and excited with so many other things in the world. Pain is pain, and it isn’t (knock on wood) deadly yet, so I’ll just save my hope for something else and keep a keen eye on the results before I get excited.
I am super annoyed for the five years of delays to dealing with *my* prior health concerns/goals.
And I am super tired of being a fucking lab rat/guinea pig.
And I am super motivating myself to take major steps on the breast cancer risk assessment. There, I’ve said it out loud, so I have to do it.
Countdown to our grandson Little Bear’s arrival: 11-ish days and counting! My phone app says he’s the size of a watermelon! Our poor daughter(-in-law) is completely overtaken by him and I can’t wait to offer to give her a break on carrying him all by herself, once he’s born and they’re ready to share.