Last Tuesday’s follow-up with my neurologist went as well as could be expected. Due to the lack of improvement, he is upping the dosage of my daily migraine prevention medication. Because of some tingling and numbness in one of my hands, he is also performing nerve testing to see if I have carpal tunnel issues. If I do not have carpal tunnel and the tingling and numbness continue or worsen, he will switch my daily medication as that would be the likely culprit. This is a much less acute issue than when I was on the first daily migraine medication, which resulted in numbness and tingling/burning sensation in my feet. It was painful and maddening, and resulted in the switch to my current medication.
I am to continue the vestibular rehabilitation for one more month to learn more exercises, and continue maintenance at home. He doesn’t see a point in me going once a week when it is something I can continue on my own at home. I don’t disagree, since I am doing one session there and 10 – 13 a week on my own at home.
As a side note, my very favorite physical therapy assistant has left the practice for a better position elsewhere. Not only had we bonded on a personal level, but as a fellow sufferer she had great insight into what her struggle has been nine years after diagnosis. It provided a realistic view, and although I’m sure my journey will differ I greatly appreciate the information she shared, and how she copes with the ups and downs. Everyone there is perfectly wonderful, but she was my favorite and I’ll miss our weekly chat sessions during therapy.
Since we are now at over six months since this occurred, Chooch and I are having some discussions regarding long term plans since it doesn’t appear that there is going to be any “quick cure”, quick being a relative term. We haven’t made any decisions, but it’s been made clear that my employment is safe for only a brief time longer. If I can’t return before then, they understandably have to release me and fill the position. I also don’t want to delay them from filling the position if it appears I’m not returning. No grudge or sour grapes, as they have been exceedingly generous with me.
I held this post because I didn’t want to play the weak and fragile card over the weekend. My goal was to answer questions if anyone asked, but to try not and let it take over my weekend symptom or conversation-wise. That said, I am extremely grateful for the care and concern shown to me. It’s hard not to feel appreciated and valued in such a caring and supportive community.
I’ll be posting photos along with a post about my spectacular experience at Balticon later this week.