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Chooch Dizzy Health

EEG and Lyme Disease Test Results

I just got a call from the doctor, and the EEG results came back normal and the Lyme Disease test was negative. We immediately felt disappointed because we are so ready for a diagnosis. However, on second thought I think I’m happy that the results are what they are. Yes, I want a diagnosis. However, I do NOT want Lyme Disease, especially as late as treatment would have been after the bite. That is very terrifying stuff based on my research today. Also, I don’t know if the normal EEG rules out or confirms what the doctor’s think is wrong. I have to say that I don’t really want that either, though. Can’t it just be a brief weird illness that goes away? Does it have to be something wrong with my heart / brain? Is that too much to wish for? It certainly feels like it at this point, but I’ve been told that has been the case for two different people with the same symptoms I have.

I have about two weeks left on the heart monitor study, then I’ll meet with the doctors. Have I mentioned how impatient I am? No? Well, the phrase that best describes me is from the movie “Postcards from the Edge”, with Meryl Streep from years ago. In it, she says “Instant gratification takes *too* long”. That is me to a ‘T’.

Continuing to be grateful for my loving and supportive husband. He rocks my socks, y’all! You would NOT believe what he had to put up with yesterday morning as we tried to trigger the stutter and other severe symptoms.

Stay safe, and hug your loved ones tight!

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Chooch Dizzy Health

Mom Always Said I Was Special…

… and now I have the gear to prove it!

Chooch and I got up bright and early this morning to get started on my 24 hour monitoring EEG. I have to wear the recording devices on my left hip, since the right is already taken up with the heart monitor recorder. When I’m having vertigo/migraine/nausea/whatever I have to hit a button on each. The EEG recorder marks when the symptom occurs and I keep a journal detailing what symptoms I was experiencing. The heart monitor recorder actually triggers a recording of my vitals for about 90 seconds after I hit the button.

The first time I had a dizzy spell, I froze and went for both buttons and was instantly reminded of the Old West, when a gunfighter would go for both holsters in a gunfight. Hence, the silly pose with my strangely intense expression.

If only I had the necessary pieces (and skill), I think I could fashion this into and interesting photo. If the sensors were sticking straight out, and the wires were copper… If I had some copper foil to wrap the ‘umbilical’ wrapped jumble of wires that comes out from the back of my head, down my shirt and connects to the device… Ah, well. The lost theatrical opportunity is just one more regret in all of this.

Luckily, I’ve had several dizzy spells today. They have been minor and brief, but it’s all data for the diagnosis so I’m not complaining! And in case you are wondering, yes. It’s extremely itchy where each electrode is ‘cemented’ to my scalp. I’m sure I’ll be in heaven once I get it taken off and wash all the gritty cement off my head. I’m not complaining, mind you! I know how lucky I am to have good insurance, a thoroughly intrigued set of doctors, a patient boss and lovingly supportive husband.

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Chooch Dizzy Health

Cooties, Stress Test and Frustration

Yesterday was the long awaited cardio treadmill stress test, which my cardiologist ordered because of my tilt table test excitement.  Poor Chooch had to take the day off and drive me, which worked out fine for him since he was still feeling the effects of the cooties we picked up over last weekend. Luckily, I was feeling vastly improved in time for the stress test.

I had a 7 am appointment at the hospital, and they took me back almost immediately to begin the test. I was sad that they wouldn’t allow Chooch to come back, as it turned out I got to see some cool stuff. They hooked me up with electrodes all over my chest. This was unpleasant for many reasons, but mainly because they used a scouring pad type thing where the attached them and my sensitive skin was NOT amused. Have I mentioned that I’m a wuss? Well, I am.

All sorts of readings were taken: EKG, pulse, blood pressure and then a different tech came in and this is where I wish Chooch had been there with his phone’s video camera. The tech used what seemed to me to be a sonogram device and I got to watch my heart in action. I didn’t think to ask what it was, but it was the same type of image I saw of my babies during sonograms. I was mesmerized as he pointed out different parts of MY heart, showing MY valves opening and closing, measuring pressure and who knows what else. Dude, it was amazing. I asked him if everything looked normal, and he said to his eyes everything was working as it should and he saw nothing abnormal in my heart, with the usual disclaimers. This was a big relief since I have inherited a horrific genetic heart disease history on my dad’s side of the family.

After instruction, I was put on the treadmill at a steep incline and a slow pace. This was heavenly for me, since I’ve had to give up my rigorous training for 5k races in October and have been unable or afraid to exercise on my own due to the severe vertigo. Every time I’ve tried to exercise, I’ve had to stop and the sedentary lifestyle I’m now stuck in has been a major source of depression. They increased the pace over time, monitoring everything and I actually had an enjoyable time with the three nurse/technicians in the room. We talked about movies, actors (Denzel! /swoon), financial horrors for the medically uninsured, and the coming snow apocalypse. At the max, the pace made it difficult for me to talk as I was pushed to the necessary HR limit for the test. I was able to do the entire test as they needed for maximum data to be attained, and I was dizzy but exhilarated. It made my craving for regular exercise excruciating, and I’m more jazzed than ever to get back to work with my trainer and to hit the track again.  Someday.

I had a heinous twenty minute coughing fit after the test, and most of my cootie symptoms returned from earlier in the week. Small price to pay, as I’m having the always-enjoyable-to-no-one-but-me soreness in my calves after having pushed myself to the max. I don’t have any real news for now, since I don’t expect to meet with the cardiologist until after the thirty day heart monitor study is complete in about two more weeks.

Afterward, Chooch and I had breakfast and ran some errands to avoid leaving the house during the forecasted snow storm. After returning home, I was able to find a walk-in clinic to do the Lyme disease blood test ordered by my doctor. This should have come earlier, to be truthful. I embarrassingly forgot about a tick that I pulled off my back sometime in the late summer/early fall of 2009. I didn’t even think about it until after the cardiologist asked if the test had been run yet, but when I did remember my doctor immediately ordered it. If I end up having Lyme disease this whole time, I’m going to feel pretty stupid. It’s the sort of thing that I would have never forgotten if I had found one on my kids. Self awareness FAIL.

Early last night I became extremely frustrated due to my inability to drive. I found a knitting project that I wanted to try, a quick knit scarf, but I could not drive to the craft store for the necessary supplies. It was clear that Chooch wasn’t feeling well so I didn’t ask him to go out for a third time, and instead hit Amazon to buy them since we have the prime shipping membership. They didn’t have what I needed available for the free shipping and my frustration grew exponentially.

It’s a small disappointment, and I truly understand that. But I had spent the day going over the expenses since my weird illness started and working on our budget, and the sacrifices we’ve had to make because of it. Trust that I know how lucky I am that I’ve had so many terrible diseases ruled out. I give thanks every day for that and for having a loving and patient husband that is willing to help me through this hopefully brief time. But dammit, I was once again thwarted on a very simple thing. Not a toy, or a video game but rather crafting supplies to make a mangled and poorly knit scarf for a loved one.  I know what you’re thinking: “Suck it up, cupcake.”, and you’re right. But I also feel completely justified in my frustration on this point, and until you lose the ability to drive for 2+ months you really don’t know how useless it makes you feel. I can’t work, I can’t do the needed household repairs, and I have to ask people to drive me everywhere. It’s the tantamount neediness that I despise and here I am in the thick of it.

There, I feel better for having whined. Thanks to those of you that tolerated it for so long.

In other news, I found out that the monitor I am wearing is not a ‘halter monitor’ as we thought the doctor said, which led me to believe it would be a cumbersome vest-like device.  It is instead a Holter monitor. Spelling is where it’s at, eh kittens? It is formally described as an ambulatory electrocardiography device, and I posted a picture in a previous post. It’s teensy and causes only a mild inconvenience due to the wires and the skin reaction I’m having to the little skin tab thingies.

I’m not looking forward to Monday, since it seems I have to do the 24 hour EEG monitoring. I’ll have electrodes stuck to my head, be given another monitor and sent home until I return 24 hours later to have it all removed. Yes, there will be pictures. After all, if you can’t laugh at yourself then you are taking yourself FAR too seriously and life is WAY too short for that.

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Chooch Podcast

The End of CoHPodcast

Chooch released the first episode of CoHPodcast in October of 2007. He was doing this as a solo podcast, essentially because I was being a big chicken. After a few episodes, I joined the podcast and around that same time we also started the Into the Blender podcast.

At the time, we were playing several times a week and were very much addicted to the game. We have always considered ourselves casual players, since we enjoyed playing through the content rather than the min/maxing and hardcore studying of stats in order to squeeze out every bit of effectiveness from our toon possible. I have great respect for those players that find enjoyment in this aspect, I’m just not one of them.  My preference is to grab a toon and jump into the fray with my healing, tanking or damage dealing.

Since then, our lives have become more complex through several different changes. I would credit podcasting itself with the greatest change, expanding our circle of friends and therefore the number of social engagements that we attend. We continued the podcast with our regular schedule until some other issues came into play.

Last year, we considered ending the podcast due to time constraints and guilt at our irregular podcast release schedule. We discussed it at length, sometimes quite passionately. We decided to continue for only one reason: the community. We were literally unable to walk away from the amazing people that we had found through the podcast. We decided to eliminate one aspect that we adored, the feedback segment, in an effort to continue the podcast by lessening the time investment necessary as we found that approximately half of the episode length was relaying the various forms of feedback we had received. Also, this started to feel like a ‘pat ourselves on the back’ segment and although we had it at the end to allow folks to skip it without penalty, it still seemed self-congratulatory since they were overwhelmingly flattering.

We were still unable to keep the schedule, and even our City of Heroes playtime dwindled. I really believe that the lack of time in game led to our reluctance to put out podcasts on a game we were no longer playing on any regular schedule. We started to feel like frauds, but decided to continue because we could at least relay the news items for our listeners.

We finally decided to end the podcast in the fall of last year. We felt we could not end it until we released the long-promised Transcendence Trial vidcast, so we went to work putting that together. We didn’t realize the time investment, so that took longer to release than planned but we finally got it out thanks to the help of friends.  The only thing left was to record the last episode. To be honest, we dragged our feet on this, again because we so love the community. While sitting in front of the mic, I suggested we finally do the blooper episode we had been talking about for ages. And maybe give the listeners one last opportunity to give feedback, if they are so inclined.

So it’s done. Episode 50 (Ding!) is recorded and in the wild. We really like that our 50th episode is our last, as it’s currently the highest level attainable in the game. Our end-game content will be at least one more episode, and also anything we find in the future that would be of interest to our gaming-minded listeners will be dropped into the feed. This will include coverage of any gaming panels we attend at upcoming cons.

Feel free to comment at the website, in iTunes, via email to cohpodcast@gmail.com or by voicemail at the Into the Blender number – (413) 669-4720. We have no idea how long it will take to cull through the fifty-plus episodes (including special episodes) to pull out bloopers, and post it to the feed. I think I’ll steal from the CoH devs for this estimate.  Soon™.

Good hunting, Heroes!