Going Off Preventative Meds

I was all ready to go into the doctor’s appointment and fight for his approval in going off the two preventative medications that I’m currently on to combat my vestibular migraines (dizziness, migraines, fatigue, occasional nausea when the dizziness is extreme). I was actually disappointed when he didn’t argue. It seems we’ve exhausted the meds I can take that won’t wreak havoc on other minor health issues I have. I think he was disappointed as well, because he wasn’t able to give me relief after all this time. I actually felt kinda bad by the end of it, as if I were firing him which isn’t the case. I still feel like he’s done and is doing everything possible. I haven’t completely decided if I’ll return to him or seek a new neurologist of this continues. I’ll likely do both.

We worked out a plan for the next three months: I’m to wean off one medication over the next 2 weeks. Then I start to wean down off the other over a couple weeks. Then we just wait and see what happens. It could take a month or so from that point for all that stuff to be out of my system and to be able to get a clear baseline as things stand now.

If it’s bad, I can go back and try something else, but for now I’ve got an appointment in February to discuss the results. This allows three months to wean down and “normalize”. I’ve also got a non-prescription route I can try before returning to him. And there’s acupuncture, which I’m leery of but know folks that have had great results.

For for those keeping score, this change will remove two medications for a total of five pills a day. I will hopefully be able to drop 3 other daily pills and an every-other-day pill that are needed for side effects. *crossing fingers*

I’m really excited to see if this change also lifts the persistent brain fog or if that is part of the condition or whatever it is that I have. I’m really tired of feeling stupid for not being able to remember things or make simple mental maneuvers.

And yes, I’m nervous about what I’ll be dealing with when the meds are out of my system. As I told my doctor, it’s possible that the medications are tremendously helpful and I just don’t know it. While I’m hopeful that the condition resolved itself already and that it’s the pills (with listed side effects of dizziness and headaches) making me feel so crappy, I know that it’s more likely that they are not. But it’s been a year, and I feel I have to try, especially since nothing has allowed life to resume normally.

One interesting tidbit – interesting to me, at least: One of the things the doc always does is a test of my balance, motor skills, eye movements, etc.,. It’s simply done in the room, and I was pretty proud that I was able to do everything with coordination, including standing still with my eyes closed. I felt like I stood stock still, like a soldier at attention. Chooch informed me later that this was not so. Apparently, I was swaying dramatically. I didn’t even feel it. Now I’m left to wonder how much my body automatically compensates for the dizziness after all this time, and how accustomed I’ve become that I don’t even notice something like swaying. Crazy.